Autistic Culture
The Autistic Culture Podcast
Autistic Medical Needs (Episode 14)
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Autistic Medical Needs (Episode 14)

Trials and challenges of healthcare for Autistic people.
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Listen to Autistic Podcast hosts discuss: Autistic Medical Needs
A: And yes, I am all with you on let's get medical professionals to be more informed. But while we're waiting, Autistic people have to learn to self-advocate and identify these issues.

In this episode of The Autistic Culture Podcast:

Matt and Angela get real, discussing the discrimination and marginalization Autistics face when seeking medical care. They share about the increased likelihood of dealing with sleep apnea, gastrointestinal problems, autoimmune disorders, Ehlers-Danlos Syndrome, POTS, mast cell activation syndrome, fibromyalgia, allergies, asthma, eczema, psoriasis, PCOS, Hashimotos, Lupus, and headaches…but a much reduced likelihood of getting the care that’s needed. 

The podcasts hosts emphasize that Autistic people often suffer from medical gaslighting and discrimination when seeking treatment. Doctors frequently dismiss or downplay their symptoms. Autistics may struggle to get medical providers to listen to them and understand them due to differences in communication styles. They advise bringing an ally to appointments when possible.

Matt: Because again, if you don't refer to the doctor as yes, yes, sir, yes, ma'am, doctor, this, this, then they're going to treat us poorly because they're going to dislike us and give us second tier treatment. And that sucks. That is discrimination.

Angela: Right.

Matt: And that discrimination leads to the poor diagnoses, leads to not listening to us, leads to dehumanizing us, because if we don't treat them like an authority, they won't treat us like a person. And of course they blame us for it.

Building accepting, informed medical practices and facilities run by and for Autistic people is a critical need which is why Matt is working to establish an culturally competent Autistic health center in his home-state of Kentucky.

They recommend Autistic adults self-educate on conditions affecting the community and learn how to self-advocate. Support groups to validate experiences and build resilience are also important for avoiding Autistic burnout.

The hosts aim to raise awareness of disproportionate health struggles faced by Autistics while affirming disability justice, neurodiversity, and Autistic pride. Accurate diagnosis and treatment are vital for quality of life. Fully including the perspectives of Autistic individuals is key to addressing systemic medical barriers and building acceptance.

This episode is a special tribute to an Autistic friend of the show who recently passed away, in part because of the difficulties Autistic people face in traditional medical institutions.

What’s your experience as an Autistic person in an allistic-centric healthcare system? Tell us about it in the comments!

What is EDS?

What is MCAS?

POTS

The POTS Facebook Group

Want some basics on Autistic Culture? Listen to Episode 23: Dimensions of Autistic Culture

Or try: Episode 36: Bad Autism Diagnosis and Episode 14: Autistic Medical Needs

Ready for a paradigm shift that empowers Autistics? Help spread the news!

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Learn more about Matt at Matt Lowry, LPP

Matt’s social media: Autistic Connections Facebook Group

Learn more about Angela at AngelaLauria.com and Difference Press

Angela’s social media: Twitter and TikTok

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Autistic Culture
The Autistic Culture Podcast
Welcome to the Autistic Culture Podcast. Each episode we dive deep into Autistic contributions to society and culture by introducing you to some of the world’s most famous and successful Autistics in history!
Whether you are Autistic or just love someone who is, your hosts, Dr. Angela Lauria, the Linguistic Autistic and Licensed Psychological Practitioner, Matt Lowry, welcome you to take this time to be fully immersed in the language, values, traditions, norms, and identity of Autistica!
To learn more about Angela, Matt, and the Autistic Culture Podcast visit AutisticCulturePodcast.com