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Elisabeth's avatar

It's very funny because when I was younger I was thinking about myself as an alien (then I discovered the 10th Doctor ahahahahahaha !) and that I was born without the instruction manual... Now each episodes make me want to scream because THIS IS IT ! (Guess I have to talk to my mast cells now...)

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Jess Lewis's avatar

What until you dig in deeper. So much is tied to MCAS - it's wild. Glad you enjoyed the episode!

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Jesse's avatar

This post showed up just days after I set a doctor's appointment to ask my doctor about MCAS, so this was an amazing coincidence for me.

I began researching it due to my PMDD, and how many people have felt relief from these symptoms by taking antihistamines like Zyrtec and Pepcid. I began taking Zyrtec and my PMDD almost disappeared. Then, I researched further, finding out that this means that it's more likely to be PME, in this case that it's often something like MCAS that's making pre-menstral symptoms much more severe. After that, looking into MCAS and how many symptoms line up, I have started searching for more answers.

Thanks to this episode, I have more resources to bring to my doctor.

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Jess Lewis's avatar

Histamine waxes and wanes every day but, for women, it also can be highly variable depending on where in your cycle you happen to be. Everyone is a little different so understanding your hormone cycle can be useful. Have you tried eating low histamine foods or mast cell stabilizing foods?

FYI I have a patient guide that could be a helpful resource when you chat with your doctor. subscribepage.io/patientguide

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